tag:blogger.com,1999:blog-7874383625212926562.post2888377307259335237..comments2023-10-15T04:53:00.495-07:00Comments on Armitage Home: Madness, I tell you... Madness.The Armitage Familyhttp://www.blogger.com/profile/04431564775819384497noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7874383625212926562.post-7212110880733964462012-06-12T12:27:15.744-07:002012-06-12T12:27:15.744-07:00we had the NJ tube for Tadd after surgery because ...we had the NJ tube for Tadd after surgery because the drs didn't want him to aspirate. it really isn't that big of a thing to get them placed it is more that it exposes them to more radiation. at PCMC they would prefer not to have NJ tubes. if i where you I would nix the NJ especially if she gets the tube out that often. I also think that it contributed to his NEC he got because the continual flow to his intestines didn't give them any rest. Tadd had a hard time keeping his feeds down so they put him on night continual feeds and decreased his amount per day bolus. he has done lots better and is gaining like he should. if I where you I would ask about the continual night feeds in my case i think it worked the best then you don't have to have a tube on your baby all the time and you wont have to get up so much in the night.<br />PS I am Jessica's sister Chelsey and my son Tadd has HLHS too.Johansonshttps://www.blogger.com/profile/13050940231053049392noreply@blogger.comtag:blogger.com,1999:blog-7874383625212926562.post-68218098381925525792012-06-07T20:15:03.497-07:002012-06-07T20:15:03.497-07:00Oh kacie I'm so sorry you're dealing with ...Oh kacie I'm so sorry you're dealing with all that. I'm dealing with insurance stuff right now and that alone is driving me crazy, I can't imagine what you're going through. Hope something works though and your little girl starts gaining weight!The Leithshttps://www.blogger.com/profile/07651372314383409099noreply@blogger.comtag:blogger.com,1999:blog-7874383625212926562.post-37631374904744507972012-06-07T18:36:47.019-07:002012-06-07T18:36:47.019-07:00If there is one thing I learned taking care of Mad...If there is one thing I learned taking care of Maddy is that sometimes you have to be the squeaky wheel, even if it's not in your nature. Don't apologize, this is your baby and you know her better than anyone. It's alright to ask for a 2nd opinion from a different doctor (even one not in that specialty) if its what you need. Good luck and trust your gut!LCMhttps://www.blogger.com/profile/09302609358772748900noreply@blogger.com